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beverlybauer
Registered: 11/28/07
Posts: 41

    12/11/07 at 08:19 PM
Reply with quote#1

Welcome to the group! I am sure others will have some good advice for you as well.    While it is overwhelming at first, it is a great diet in that it is healthy. 

 I’d suggest going through your pantry and either getting rid of all that is not gluten free or marking each with a big black “X” so you don’t accidentally use what will make you or your celiac family member sick.  Since my husband can eat whatever he wants and our kids are grown I didn’t just throw things out.  But eventually you may want to work in that direction and end up with no gluten in the house.  It is hard to eat things in front of the celiac (especially children) when you are telling them they can’t have what you are eating. 

 If your celiac is a child, I’d suggest a date night for you and your husband occasionally so you can go out and eat what you want without feeling guilty.  My husband eats gluten free at home, but when we go out he has a chance to have whatever he is missing or craving.  One of our daughters has to be gluten free and visited recently with her family.  We had great food and even great desserts.  I made a cherry pie, and peanut blossoms and a ‘Million Dollar Pie’ chocolate dessert.  You will learn what your family likes and how to cook/bake with different flours.  You don’t need to try and learn it all at once.  Do the basics of putting good plain food on the table.  Fresh foods (fruit, veggies, plain meat, poultry, fish) are fine.  You can find some ready made items that will bridge the gap for you until you get used to it all. Pamela’s products are great (costly) and Glutino and ever so many others. 

 Heinz catsup is gf, Hellman’s mayo, read Kraft labels in detail to help you learn about salad dressings etc.  Take your cell phone with you to the grocery store and call the 800 numbers on the labels and ask questions.  Hormel (and all ConAgra companies) is one of the meat brands with full disclosure.  It won’t say gluten, but should say something like ‘derived from barley’ to let you know it is not safe.  Other companies besides Kraft and ConAgra are Hershey’s Nestles, General Mills, and Nabisco.  I well remember my first trip to the grocery store and looking at labels and thinking there was nothing I could buy.  It really is not that bad. 

 Ask us lots of specific questions.  What kind of chicken broth?  There are several.  I use Swanson’s Natural Goodness Chicken Broth…but it has to be the label that says ‘100% fat free’ (in red letters) as the one they make that says 99% fat free does have gluten in it.  Please don’t give up on us, keep asking questions. 

 Do try to make the next meeting and meet some of the people who will be more than willing to give you ideas.  We almost always have samples of gluten free foods at the meetings and some people bring goodies they have baked as well.  We often have a speaker (doctor, dietitian, or someone who specializes in an area of benefit to us).  Hope to meet you soon.

 Beverly

Beverly Bauer, Resource Unit for East TN

CSA/USA, http://www.csaceliacs.org

865-458-9181, bevbauer@charter.net

Celi-ACT support group, http://www.celi-act.com

 

 


__________________
Beverly Bauer, ETN Resource Unit for CSA/USA, http://www.csaceliacs.org
865-458-9181; bevbauer@charter.net
baam
Registered: 11/28/07
Posts: 44

    12/11/07 at 10:22 PM
Reply with quote#2

First of all....welcome to our group.   Our group has grown in size so much and there are several people here who have a lot of good information. 

Please know that a gluten free diet does seem overwhelming at first, but it truly does get easier as time goes on.   When we first got our diagnosis, I read a great deal of information on the internet. Two good websites to start are:
http://www.celiac.com <http://www.celiac.com/>  and http://www.delphiforums.com
<http://www.delphiforums.com/>    (another support group that cover topics such as how to keep your kitchen from being cross-contaminated, an up to date list of gluten free products, recipes, etc.   You have to register, but it is free.  We use it often.)

I also really liked the Living Gluten Free for Dummies book (in the "for Dummies" series) by Dana Korn.  She is a mom of a GF child and it really helped me understand some of the things  that parents must deal with on a daily basis. 
 
Please ask any questions that you have.  We have all asked them before! :-)

Hang in there..it really does get easier and better!


Alisa


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Alisa Weeks
Board Member Celi-Act Support Group
ajball
Registered: 09/03/08
Posts: 1

Contact using Yahoo

    09/03/08 at 09:46 AM
Reply with quote#3

OK-I am a mother of a newly diagnosed GF kid...(is that the correct term???) I am very overwhelmed at this moment...and you say it will get easier??? I sure hope so. I am so caught up with a multitude of emotions right now that I don't even know where to begin.  I am not sure where to begin.  I did take note of the name brands of some foods that you listed in your comment section.  I am hoping to find recipes and figure out how all of this comes together.  ANY suggestions, name brands that you know of, recipes, etc. that can be forwarded my way would certainly be appreciated until I "get a grip" on things.  THANKS for having websites, groups, and support out there for people like myself that have no idea what they are doing right now......I look forward to hearing from ANYONE who's walking the same road that we are......GOD BLESS!



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***LET GO AND LET GOD!***
HeyItsA
Registered: 09/24/08
Posts: 4

    09/24/08 at 10:15 AM
Reply with quote#4

Hi Everyone!

I havent truly been diagnosed by any testing, but my Dr., just from the symptoms I had, suggested that I try GF diet before the expensive testing. So far so good. A few days of pain, but overall A-OK.

Just wanted to say hi!

Amanda
HeatherLeigh
Registered: 08/01/08
Posts: 1

    10/25/08 at 06:42 PM
Reply with quote#5

Hello,

It's great to find a support group close to home.  I am from Maryville, TN.  I wasn't diagnosed Celiac but my son and I are gluten intolerant diagnosed by Enterolabs.  I don't know how you all feel about them but I followed their advice and began the GF diet.  I have been GF since May 08, and my son has been GF since July 08.  My symptoms were digestive among others.  My son's were digestive, and he also had epilepsy which could not be attributed to anything.  Since being GF my son has had no more seizures.  Praise God!  I would love to be active in the GF community.  I am thankful to have found this support group.

*Heather*
beverlybauer
Registered: 11/28/07
Posts: 41

    10/25/08 at 07:45 PM
Reply with quote#6

Hi Heather,  and truly you are welcome to the group.  We come by our gluten-free diagnosis many different ways.  So glad you and your son are doing well on the diet.  I don't know if you just signed up for the Discussion Forum or if you also signed up for the listserv (e-mail list).  The e-mail list is the main place we ask questions, ask for recipes of specific types, get people to sign up for the extra things like 'lunch bunch' which meets on the months that we don't have a group meeting.  Also for our next support group on Nov. 10.  Announcement follows.  We each pay for our own meals...order whatever we want.  This has become a yearly event in November.  Most meetings are at the Children's Hospital complex.  My e-mail is bevbauer@charter.net if you have questions.  We have several active people in Maryville.  You'll want to know them.  Hope to meet you in November. 
Beverly Bauer, Volunteer with CSA/USA (national Celiac Sprue Assoc).

Our next Celi-ACT support group meeting is set for Monday,
November 10th, 6 pm at Outback Restaurant on North Peters Road. 
Reservations are REQUIRED and we strongly suggest that you respond 
as quickly as possible as this is our most well attended meeting and our 
space is limited.
 Dr. Youhanna S. Al-Tawil, Children's Pediatric Gastroenterology at 
Children's Hospital is the speaker.  Dr. Al-Tawil saw an increasing need 
for parents to find support for their newly diagnosed children and began 
this group.  This group has quickly become a resource for parents, 
individuals, and family members whose loved ones were diagnosed 
needing a GF diet. 
E-mail your reservations (including name and how many will be 
coming) to Tammi Ford at TFord@blountchamber.com   If you make a 
reservation and your plans change, please let us know.  We can open that 
reservation back up.  Families are welcome and encouraged.  You don't 
have to come alone.....people who eat gluten are welcome.  (end of 
announcement)
I don't know if you just signed up for the Discussion Forum or if you also 
signed up for
 

__________________
Beverly Bauer, ETN Resource Unit for CSA/USA, http://www.csaceliacs.org
865-458-9181; bevbauer@charter.net
Eric
Avatar / Picture

Registered: 02/16/09
Posts: 3

    02/16/09 at 12:54 PM
Reply with quote#7

New Celiac myself, looking for support.  Never had to watch what I eat, including for weight.  Big life change for me, 32 years old.  Both my Dad and Grandmother have Celiac as well.


__________________
Diagnosed Feb 2008

Son and Grand-son of Celiac's
beverlybauer
Registered: 11/28/07
Posts: 41

    02/16/09 at 05:13 PM
Reply with quote#8

Welcome to our group.  I hope you've also signed up for the listserv (e-mail list) as that is where you'll find the most help.  Please ask questions and become an active part of our group.  Feeling lost is normal.  Grieving over the diagnosis is normal too, but you'll soon be so thankful for all the new foods you have found to replace the old ones.  If you are dying for a pizza, Uno's in Maryville has g-f pizza and a g-f menu.  Let us know how best to help you.
Beverly Bauer, bevbauer@charter.net

__________________
Beverly Bauer, ETN Resource Unit for CSA/USA, http://www.csaceliacs.org
865-458-9181; bevbauer@charter.net
baam
Registered: 11/28/07
Posts: 44

    02/16/09 at 06:39 PM
Reply with quote#9

Hi Eric,

Welcome to our group.  You will find a lot of help here as all of us remember how overwhelming this diet can be initially.  You will find that in time, it is much easier.

The doctor that sponsors our support group has a great deal of information on his website: http://www.giforkids.com  And as always, ask questions!

I suggest that you go to http://www.celiac.com for a list of ingredients that are safe and not safe.  The link can be found on the bottom of the left side of the page.  You can print that off to take with you. 

Earth Fare has a GF cooking class.  You might want to call the store to check on the date and time...777-3837.  I would suggest that you try to attend those as they were very helpful to us!  You can also purchase many of your GF items there.  Kroger in Knox Plaza and Powell are doing a nice job of stocking items in the Healthy Food sections.  Go Nutrition in Farragut has many items as well.  If you live in a different area, just let us know.  There are different stores in different areas.

We will be having our Lunch Bunch tomorrow at PF Changs at 11:30.  We would love for you to join us.  Please let us know if you want to come.  PF Changs has a GF menu! 

I also encourage you to come to our meetings.  We meet every other month on the 3rd Monday of the month at Children’s Hospital.  Our next meeting is March 16 from 6:00-7:30pm at Children’s Hospital.   There is free child care provided for the children in a different room with some simple games, movie, and books for those who do not want to stay in the meeting.

Please ask any and all questions because they have been asked before.  It will get easier in time!  Hang in there!

Take care!
Alisa W.

Celi-ACT Board


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Alisa Weeks
Board Member Celi-Act Support Group
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